Pengalaman Caregiver dalam Merawat Anak Thalassemia β Mayor di Kota Jambi

Mujahidah, Atiqah Khairi (2021) Pengalaman Caregiver dalam Merawat Anak Thalassemia β Mayor di Kota Jambi. S1 thesis, Universitas Jambi.

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Abstract

ABSTRAK Latar belakang: Thalassemia β mayor adalah penyakit yang membutuhkan pengobatan seumur hidup. Hal ini menyebabkan dampak terhadap penderita dan caregiver thalassemia. Dampak yang dialami caregiver berupa dampak psikososial, emosional, beban waktu dan tenaga dalam merawat anak thalassemia. Tujuan penelitian: Mengidentifikasi karakteristik caregiver yang merawat anak thalassemia β mayor dan mengeksplorasi pengalaman caregiver dalam merawat anak dengan thalassemia β mayor. Metode penelitian: Penelitian ini merupakan penelitian kualitatif dengan pendekatan fenomenologi deskriptif yang melibatkan 13 responden dengan dipilih secara purposive sampling. Penelitian ini dilakukan dengan metode wawancara mendalam sampai di dapatkannya saturasi data dan field note. Hasil penelitian: Dari 13 responden, terdapat 9 orang yang tidak mengetahui tentang penyakit thalassemia dan 4 orang mengetahui namun belum komprehensif mengenai penyakit thalassemia. Seluruh caregiver belum memiliki pemahaman komprehensif mengenai pengobatan thalassemia dan pentingnya monitoring penyakit thalassemia. Masalah finansial dan kekhawatiran akan masa depan anak juga ditemukan pada penelitian ini. Kesimpulan: Caregiver anak thalassemia ditemukan belum memiliki pemahaman komprehensif mengenai thalassemia sehingga belum dapat maksimal memastikan anak mendapatkan pengobatan dan perawatan yang seharusnya. Kata kunci: Thalassemia β mayor, pengalaman merawat, caregiver, pemahaman, pengobatan, psikologi. ABSTRACT Background: Thalassemia β major is a disease that requires lifelong treatment. This causes an impact on patients and caregivers of thalassemia. The impact experienced by caregivers is in the form of psychosocial, emotional impacts, the burden of time and energy in caring for thalassemia children. Research objectives: To identify the characteristics of caregivers who care for children with thalassemia major and explore the experience caregivers in caring for children with thalassemia major. Research method: This research is a qualitative research with a descriptive phenomenological approach involving 13 respondents and selected by purposive sampling. This research was conducted using in-depth interviews until data saturation was obtained and note fields Result of research: From 13 respondents, there are 9 people who do not know about thalassemia disease and 4 people know but not comprehensively about thalassemia disease. All caregivers do not have a comprehensive understanding of thalassemia treatment and the importance of monitoring thalassemia disease. Financial problems and the worries about children's future were also found in this study. Conclusion: Caregivers of thalassemia children were found to have not a comprehensive understanding of thalassemia so that they could not maximally ensure that children received proper treatment and care. Keywords: Thalassema β Mayor, experience in caring, caregiver, understanding, treatment, psychology.

Type:	Thesis (S1)
Uncontrolled Keywords:	Thalassema β Mayor, experience in caring, caregiver, understanding, treatment, psychology
Subjects:	L Education > L Education (General)
Depositing User:	ATIQAH KHAIRI MUJAHIDAH
Date Deposited:	28 Jun 2021 02:42
Last Modified:	28 Jun 2021 02:42
URI:	https://repository.unja.ac.id/id/eprint/21943

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